Just a fun photo survey to give you a better idea of the person behind this blog!
A picture of yourself with ten facts
1. My favorite color is pink
2. I love pictures!
3. I have been a nail biter my entire life, and recently got my first manicure!
4. Animals are my heart
5. I am super sensitive
6. I truly love spending time with my parents
7. I went fishing for the first time this year – and caught one!
8. I hate when people tell me that I “stay sick” as if it’s my fault
9. I am a heavy sleeper… nothing wakes me up
10. I have danced my whole life – ballet, jazz, tap, etc.
A picture of you and the person you have been closest with the longest
A picture of a favorite memory
A picture that makes you laugh
Shopping in my onesie…
A picture of the person who has gotten you through the most
A picture of the person you do the most ****** up things with
A picture of something you love
A picture of someone you could never imagine your life without
A picture of someone who inspires you
My grandmothers on both sides of the family
A picture of something that has made a huge impact on your life recently
A picture of something that means a lot to you
A picture that can always make you smile
My family and my boyfriend have been asking what I want for Christmas. It seems like all year long, it’s easy to think of things I really want, but at Christmas or my birthday, those things elude me! Does anyone else experience this?
So after days of contemplating (and Google searching!) I finally came up with a few Christmas wants!
1. A migraine heat mask: At MY house, I have a Bed Buddy migraine mask that I can microwave for one minute so that it’s nice and toasty. It feels AMAZING on my head during bad headaches. I want an additional one to keep at my boyfriend’s house so that I don’t have to try to pack it every time I visit on the off chance that I get a headache.
2. An acupuncture mat: I have never had acupuncture (too expensive!), or used an acupuncture mat… but I’ve read great reviews about them on Amazon.com. I figure, why not give it a shot? Anything to ease some of my regular pain!
3. A massage back rest for the car: I commute to my job every day, with at least two hours of driving per day. I think driving causes a great deal of my tension in my shoulders/back. I discovered a massage pad that sits against your seat and plugs into the cigarette lighter for power! Yes!!!
4. One of these guys!
A beastie massage ball! I figure that if I love my foam roller so much, I’m sure I would love this to pinpoint those hard to get to places in my back.
So… that’s what I came up with. But do you notice something about my list?
I’m a 26 year old woman. I should be asking for shoes and jewelry and dresses and perfume. Instead, everything I want is therapeutic. This is slightly funny and slightly sad. My body is too old for me.
Sorry for the lack of attention I’ve given my blog lately… but…
I’ve been sick.
It started out innocently enough… a cough here and there, a sneeze, a sniffle. But within days, it turned into a full fledged high fever, achy body, congested head sickness. Ugh! I try to be vigilant when I’m around others that are sick, especially since I was diagnosed with an autoimmune disease, but it’s the season for germs and sickness and yuck. So, my boyfriend and I both ended up sick!
I finally broke down the day after Thanksgiving and went to the doctor. The over the counter meds just weren’t making a difference at all. She said she was glad that I had come, because if I hadn’t, it wouldn’t be long before I got bronchitis.
One round of antibiotics later (plus some strong cough medicine to help me sleep at night) and I feel much, much better!
Although it took me much longer to get over my sickness than my boyfriend, he was an exceptional doctor and nurse.
If there’s one thing that my autoimmune disease has stripped me of… it’s energy! Advocare offers an awesome product called “Spark” energy drink. It’s a healthy alternative to energy drinks, which is a plus. You mix the powder into your glass of water and voila!
It comes in different flavors, but I love the orange one the best. It is delicious! I feel more energetic and extremely focused about ten minutes after I drink it. It also does not cause you to “crash” like other energy drinks do. It’s much easier on the body but is very effective!
Having an Invisible Disease isn’t always easy. Don’t get me wrong… I am thankful that my illness can’t be seen from the outside, however, people tend to think that it isn’t real if they can’t see it for themselves.
“You don’t look sick.”
“You seem healthy.”
Again, I am thankful that I look healthy. I just wish more people understood that sometimes I have to take measures to feel okay. If I plan a busy weekend, I have to allow for some down time to rest and recuperate. I have to listen to what my body tells me and act accordingly. It isn’t fun, but it’s life. And I plan to live a long and full one.
Sometimes, I’m overly emotional and I snap at the people I love. I sometimes cry at the drop of a hat. But dealing with almost constant pain isn’t easy. There are moments that it just becomes unbearable and I break.
But after the outburst, after the tears… there’s release. There’s hugs. There’s kisses. There’s strength. And faith.
1. The illness I live with is: Sjogren’s Disease
2. I was diagnosed with it in the year: December of 2012
3. But I had symptoms since: College
4. The biggest adjustment I’ve had to make is: Learning to adjust my plans for my fatigue level
5. Most people assume: That I am lazy
6. The hardest part about mornings are: Making myself get out of bed
7. My favorite medical TV show is: Grey’s Anatomy
8. A gadget I couldn’t live without is: My iPhone or Laptop
9. The hardest part about nights are: Relaxing my back enough to fall asleep
10. Each day I take __4__ pills daily.
11. Regarding alternative treatments I: am willing to try some things
12. If I had to choose between an invisible illness or visible I would choose: Invisible
13. Regarding working and career: I work an intense full time job that requires me to be on call almost all of the time
14. People would be surprised to know: how much pain I am in on a daily basis
15. The hardest thing to accept about my new reality has been: Having people understand that my fatigue is not the same as their “tired”
16. Something I never thought I could do with my illness that I did was: Continue to get better at running
17. The commercials about my illness: There aren’t any that I have seen
18. Something I really miss doing since I was diagnosed is: feeling healthy and strong
19. It was really hard to have to give up: I haven’t really had to give up anything yet
20. A new hobby I have taken up since my diagnosis is: Blogging and lots of research!
21. If I could have one day of feeling normal again I would: go to Disney World!!
22. My illness has taught me: not to judge a book by its cover
23. Want to know a secret? One thing people say that gets under my skin is: ”You should get more sleep”
24. But I love it when people: Take time to ask questions and understand what I am going through
25. My favorite motto, scripture, quote that gets me through tough times is: ”Psalm 147:3 ‘He heals the brokenhearted and binds up their wounds.‘
26. When someone is diagnosed I’d like to tell them: Take is one day at a time
27. Something that has surprised me about living with an illness is: How many rude and selfish people are in the world
28. The nicest thing someone did for me when I wasn’t feeling well was: allow me the time to nap and rest
29. I’m involved with Invisible Illness Week because: I want to raise awareness
30. The fact that you read this list makes me feel: like I am helping to teach others about the difficulties we face
I have been officially off of Prednisone for one week now. The symptoms I previously wrote about reappearing have seemed to settle down. Yet, the emotional side effects are still in full swing! (Yuck!)
I have been on Prednisone since January, so I guess my body will just take some time to get used to the change. I am beginning to feel a little better, at last! I understand that Prednisone is a wonderful drug, but the side effects are almost unbearable!
I pray that I continue to do well without the use of Prednisone and that the Plaquenil that I take each day will do its part to keep the symptoms at bay. (Fingers crossed!)